LIFELYME
(A
non-profit 501(c)3 charity organization)
An
Educational Resource for Lyme Disease and Related Diseases
enter
NEWS UPDATE
Minnesota
has a NEW BILL to protect Physicians treating Lyme Disease Click Here!
Connecticut Attorney General Charges IDSA with Violating Lyme Antitrust . Click here for more info!
Lyme Disease Review Panel Hearing WEBCAST
The Infectious Disease Society of America (IDSA) Lyme Disease Review Panel hosted an all-day hearing as an opportunity for patients, physicians and scientists to present information relevant to the 2006 IDSA Lyme Disease Guidelines. Click here!
|
UAB's Whitley Installed as President of Infectious Diseases Society
12/11/2009 |
|
|
|
After musician Steve Cole was diagnosed with Lyme disease in 2007, he and his wife, Julie, set upon a path of educating others on the debilitating disease. And Steve has even recorded a CD of contemplative music to help fund research and treatment. Cole’s CD, “Angel’s Wing” is available online. To contact Julie Cole to arrange a speaking engagement, call 850-892-9837. More information about the work of the Lanford Foundation is available at the www.lifelyme.org |
Klimas Clinic
now open in Miami, FL
The time has finally arrived !
Dr. Nancy Klimas opened the new Chronic Fatigue & Immune
Disorders Research and Treatment Center in December. Located in
Kendall at 8720 N. Kendall Drive, Suite 108, Miami, FL 33176, the
clinic will begin seeing patient on Friday, December 4th. Clinic days
will be Mondays and Fridays for the near future. The clinic is a
private fee-for-service clinic, meaning full payment will be
requested at the time of service. Forms will be given to you to
submit to yur own insurance provider.
Labs will be drawn at the clinic but will be billed directly through your insurance provider. For more information, visit the website at www.cfsclinic.com. If you have any questions or want to make an appointment , email the clinic at info@cfsclinic.com or call 305-595.4300.
UNDER OUR SKIN DOCUMENTARY ON SHORT LIST FOR BEING NOMINATED FOR THE OSCAR ! Lyme documentary
A gripping tale of micobes, medicine and money UNDER OUR SKIN investigates the untold story of Lyme disease, an emerging epidemic larger than AIDS. Each year thousands go undiagnosed or misdiagnosed, often told that their symmptoms are "all in their head." Following the storeis of patients and physicians fighting the disease, the film brings into focus a hounting picture of the health care system and a medical establishment all too willing to put profits ahead of patients.
New DVD of UOS Available at the website, check it out. http://www.underourskin.com/
Don't miss this film. Under Our Skin has won 7 top film awards. Besides the highly acclaimed Tribeca Award, the most recent film was the "Best Feature Film - Silver Award", at the International Health Film Festival in Greece
Fall 2009
The 'Turn the Corner Foundation'
will hold their Annual Gala "UNMASK THE CURE" Thursday
Evening at the Edison Hotel, Ballroom in New York, New York. Several
of members of LIFELYME will be attending the event.
Summer 2009
NEUROENDOCRINE IMMUNE CENTER will
be dedicated to ME/CFS, fibromyalgia, Lyme disease, GWS, MCS, and
other related illnesses.
Sat., Jun 27, 2009, via the
Co-Cure Listserv: Fantastic news! The New Jersey Assembly has
unanimously passed Assembly Resolution 202 to fund a Center of
Excellence in New Jersey for Chronic Neuroendocrine Immune Disorders
- which include CFS, FM, Persistent Lyme Disease, and related
illnesses. The Assembly voted unanimously for the passage of this
legislation. Presently, THE LANFORD FOUNDATION - Lifelyme, Inc. and
PANDORA, Inc. are drawing up a separate NEI Corporation for the
Center, and proceeding with the planning for the housing for the
facility in New Jersey. We are on track in the development of our
Corporation Business Plan and a committee composed of over 30
volunteers has been organized. We are all very excited about the
support we have received from a multitude of top NJ officials
interested in promoting our project. ( More info below )
GOLF FUND
RAISING TOURNAMENT IN BUFFALO
The 'FIRST ANNUAL CWA GOLF
TOURNAMENT FOR CHARITY' was held at the Chestnut Hill Golf Club on
September 13th in the Buffalo area. The weather was perfect, and a
great time was enjoyed by all. Pictures have been posted on Lori
Lawhead's Facebook page. Our thanks to John and all the wonderful
people who made this event memoriable. Plans are already being made
for the 'SECOND ANNUAL CWA GOLF TOURNAMENT' for Spring, 2010.
On the NEI Center
*The NEI
Neuroendocrineimmune Disorder Research Center
The Lanford Foundation -
LIFELYME, Inc. first conference "Similarities and Paradoxes in
Chronic Illnesses" hosted last January 2008 at the Vinoy Resort
in St. Petersburg, Florida was a notable event because it brought
together speakers from both the Chronic Fatigue/Fibromyalgia, Gulf
War Syndrome and Multiple Chemical Sensitivity community and the Lyme
community. The sharing and resulting merging of information on
chronic illnesses presented at this conference was a eye opener for
the medical professionals who attended the event. As a result of the
success of the conference, P.A.N.D.O.R.A., Inc., a CFS/ME
organization in Miami, Florida invited us to partner with them on the
establishment of a NEI Reseach Center. Presently we are working
together towards this goal.
MEETING THE
CHALLENGES OF LYME DISEASES AND OTHER CHRONIC ILLNESSES
The Lifelyme foundation
understands the similarities and paradoxes that exist between all
Neuroendocrine Immune Disorders. These illnesses include Lyme Disease
( Borreliosis Complexes). Chronic fatigue Syndrome, Fibromyalgia,
Gulf War Syndrome, Multiple Chemical Sensitivities, Autism,
Alzheimer's and autoimmune disease like MS, Lupus, RA, ALS, and
Parkinson's. The need for better testing, diagnosing and treatment of
NEID patients has created new challenges for researchers, physicians
and the resulting pressure for better patient care in our society.
In November, 2008, in an effort
to help meet these new challenges, THE LANFORD FOUNDATION, Lifelyme,
Inc. and P.A.N.D.O.R.A., Inc. decided to collaborate our resources.
P.A.N.D.O.R.A. is a non-profit CFS/ME/CFIDS foundation located in
Miami, FL. The partnership between Lifelyme and P.A.N.D.O.R.A. was
notable as it brought together for the first time advocates from the
Lyme disease community and the CFS/ME?CFIDS community. This merge
resulted in P.A.N.D.O.R.A. Inc. embracing Lyme disease as one of the
diseases under the P.A.N.D.O.R.A. umbrella. Our collaboration also
developed into the forming of a grass roots initative to establish a
Neuroendocrine Immune Center at a Medical Ccllege in the Northeast.
Once the NEI Center is in full operation it is our vision to setup
satelite NEI Centers in other states.
The idea for these NEI Centers is
based on the philosophy that the similarities in the symptoms of
Neuroendocrine Immune Disorders are the human bodies response to
similarities in the underlying pathophysiologies that cause
Neuroendocrineimmune Disorder illnesses. Neurological and psychiatric
problems and autoimmune diseases are implicated in patients diagnosed
with NEIDs. Research is connecting Lyme Disease, Autism, Alzheimer's,
MS, Parkinson's, Lupus and other immune dysfunction. Immune
deficiency in cancer patients is well documented, and tumor cells
have developed a variety of cellular, and molecular mechanisms to
avoid anti-tumor immune responses. Accordingly the cornerstone of the
NEIDs research mission is that discoveries and advances made in any
one of the NEIDs will be beneficial to other chronic illnesses.
All Lifelyme
advocates are volunteers. Lifelyme's Board members are professional,
dedicated and passionate people giving 100% of their time and energy
towards the mission of the foundation.
We are doing our part - Please
won't you do yours?
Mail donations to:
NEI CENTER
c/o THE LANFORD FOUNDATION -
LIFELYME, INC.
1400 VILLAGE SQUARE BLVD.
SUITE 3-241
TALLAHASSE, FL 32312
Thank you for your support.
Donations can be made by check or
thru Paypal - click on Donations in left-hand column on this page.