LIFELYME
(A
non-profit 501(c)3 charity organization)
An
Educational Resource for Lyme Disease and Related Diseases
enter
NEWS UPDATE
SENIOR OLYMPIAN OVERCOMES PARALYSIS & NEAR DEATH TO WIN SILVER!
[ Genomics and
Molecular Medicine made it possible]
More than a
dozen years ago when Veny Musum, Senior Vice President of John Paul
Mitchell Systems and founding member of The NJ Council on Physical
Fitness & Sports collapsed in the hallway of his house from
relentless crushing pain from chronic Lyme disease, going to the
Senior Olympics had to be the furthest thing from his mind. Just
making it through another day was all he was trying to do. Yet, on
Sunday, September 12th he not only found his way back to attempt
competing in The Senior Olympics, he won a Silver Medal in the 800
meter track event!
“I have
the absolutely brilliant work of molecular scientist Trevor Marshall,
PhD and my heroic doctor, Lesley Fein, Caldwell, NJ to thank for this
miracle!” Musum explains he went to over 20 different doctors
and tried everything from naturopathic medicine to IV’s in his
chest via a catheter for over four straight years to get his health
back.
Dr. Trevor
Marshall will be Chairing a session at the prestigious www.DNAday.com
to be held in China in April of next year celebrating the 50th
anniversary of the discovery of DNA by Watson and Crick in 1951. The
event is replete with a list of Nobel Prize Winners and will clearly
be one of the seminal scientific meetings in the world in the
foreseeable future.
Musum appeared
on both PBS and NJN News in addition to being part of a Sunday front
page story in The Star Ledger and in his local paper, The
Bernardsville News as just some of the State’s media that have
taken note of his struggle and astonishing road back to health.
“Almost everything you think you know about Lyme disease and
more importantly, chronic illness in general is misleading at
best” he remarks.
In addition to
this, Musum is Chairman of The NEI (NeuroEndocrineImmune) Center,
www.nei.com an organization seeking to establish a first in the world
center to bring this type of breathtaking, revolutionary medicine to
the general population. The protocol has been shown to be effective
in at least 50 different heretofore imponderable chronic illnesses
that range from neurological, dermatological, rheumatological,
psychological, gastroenterological, etc. The success rate is
approaching 90% which is unheard of for all those in the clinical cohort.
On the
political front, Musum and his colleagues have garnered overwhelming
backing from all branches of government. Recently formal Resolutions
in support of the establishment of a center for chronic illness
initiated by Senator Kip Bateman and Deputy Speaker Upendra Chivukula
got unprecedented support. Co-prime sponsorship by the Chairman of
the NJ Assembly Health Committee, Herb Conaway and NJ Senate Health
Committee Chair, Loretta Weinberg helped gain UNANIMOUS votes of
support for both AR202 in The Assembly (78-0) and SR20 in The Senate
(38-0). Both
the former and current Governor are aware of the groups work as well
as both United State Senators and many US Congressman from our State.
Executive Director of the New Jersey Conference of Mayors, Al LiCata
has also been a strong supporter. “It’s heartening to see
such incredible bi-partisan support from every level of government at
the local, State and Federal level Musum remarked. It shows when an
issue of this importance is raised and a clear solution is offered,
every elected official is willing to step forward. ”
“Next to
the day I married my wonderful wife, it ( winning the Silver Metal in
the NJ Senior Olympics ) was the happiest day of my life. Every step
I took was to bring hope to countless others. It’s a
miracle” he said.
They
interviewed Musum on video at the Games and he told his personal
story and of the wonderful emerging science that saved his life. When
the President of The Games, Mike Garamella heard about it, in an
unprecedented move, he awarded Musum companion “Honorary”
Silver Olympic medals to give to both Doctor Fein and Doctor Marshall.
Musum was moved to tears.
“Once and
for all” he said, “this definitely PROVES how powerful the
Marshall Protocol is and how it works when nothing else for over a
decade did. “God Bless doctors’ Fein and Marshall for what
they are doing. They are brilliant, courageous and caring and we
simply MUST bring these new breakthroughs in Molecular Genomic
Medicine to the millions of others suffering with chronic illness
with all speed. Millions are depending on it.”
Minnesota
has a NEW BILL to protect Physicians treating Lyme Disease Click Here!
Connecticut Attorney General Charges IDSA with Violating Lyme Antitrust . Click here for more info!
Lyme Disease Review Panel Hearing WEBCAST
The Infectious Disease Society of America (IDSA) Lyme Disease Review Panel hosted an all-day hearing as an opportunity for patients, physicians and scientists to present information relevant to the 2006 IDSA Lyme Disease Guidelines. Click here!
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UAB's Whitley Installed as President of Infectious Diseases Society
12/11/2009 |
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After musician Steve Cole was diagnosed with Lyme disease in 2007, he and his wife, Julie, set upon a path of educating others on the debilitating disease. And Steve has even recorded a CD of contemplative music to help fund research and treatment. Cole’s CD, “Angel’s Wing” is available online. To contact Julie Cole to arrange a speaking engagement, call 850-892-9837. More information about the work of the Lanford Foundation is available at the www.lifelyme.org |
Klimas
Clinic now open in Miami, FL
The time has finally arrived !
Dr. Nancy Klimas opened the new Chronic Fatigue & Immune
Disorders Research and Treatment Center in December. Located in
Kendall at 8720 N. Kendall Drive, Suite 108, Miami, FL 33176, the
clinic will begin seeing patient on Friday, December 4th. Clinic days
will be Mondays and Fridays for the near future. The clinic is a
private fee-for-service clinic, meaning full payment will be
requested at the time of service. Forms will be given to you to
submit to yur own insurance provider.
Labs will be drawn at the clinic but will be billed directly through your insurance provider. For more information, visit the website at www.cfsclinic.com. If you have any questions or want to make an appointment , email the clinic at info@cfsclinic.com or call 305-595.4300.
UNDER OUR SKIN DOCUMENTARY ON SHORT LIST FOR BEING NOMINATED FOR THE OSCAR ! Lyme documentary
A gripping tale of micobes, medicine and money UNDER OUR SKIN investigates the untold story of Lyme disease, an emerging epidemic larger than AIDS. Each year thousands go undiagnosed or misdiagnosed, often told that their symmptoms are "all in their head." Following the storeis of patients and physicians fighting the disease, the film brings into focus a hounting picture of the health care system and a medical establishment all too willing to put profits ahead of patients.
New DVD of UOS Available at the website, check it out. http://www.underourskin.com/
Don't miss this film. Under Our Skin has won 7 top film awards. Besides the highly acclaimed Tribeca Award, the most recent film was the "Best Feature Film - Silver Award", at the International Health Film Festival in Greece
Fall 2009
The 'Turn the Corner
Foundation' will hold their Annual Gala "UNMASK THE CURE"
Thursday Evening at the Edison Hotel, Ballroom in New York, New York.
Several of members of LIFELYME will be attending the event.
Summer 2009
NEUROENDOCRINE IMMUNE CENTER
will be dedicated to ME/CFS, fibromyalgia, Lyme disease, GWS, MCS,
and other related illnesses.
Sat., Jun 27, 2009, via the
Co-Cure Listserv: Fantastic news! The New Jersey Assembly has
unanimously passed Assembly Resolution 202 to fund a Center of
Excellence in New Jersey for Chronic Neuroendocrine Immune Disorders
- which include CFS, FM, Persistent Lyme Disease, and related
illnesses. The Assembly voted unanimously for the passage of this
legislation. Presently, THE LANFORD FOUNDATION - Lifelyme, Inc. and
PANDORA, Inc. are drawing up a separate NEI Corporation for the
Center, and proceeding with the planning for the housing for the
facility in New Jersey. We are on track in the development of our
Corporation Business Plan and a committee composed of over 30
volunteers has been organized. We are all very excited about the
support we have received from a multitude of top NJ officials
interested in promoting our project. ( More info below )
GOLF FUND
RAISING TOURNAMENT IN BUFFALO
The 'FIRST ANNUAL CWA GOLF
TOURNAMENT FOR CHARITY' was held at the Chestnut Hill Golf Club on
September 13th in the Buffalo area. The weather was perfect, and a
great time was enjoyed by all. Pictures have been posted on Lori
Lawhead's Facebook page. Our thanks to John and all the wonderful
people who made this event memoriable. Plans are already being made
for the 'SECOND ANNUAL CWA GOLF TOURNAMENT' for Spring, 2010.
On the NEI Center
*The NEI
Neuroendocrineimmune Disorder Research Center
The Lanford Foundation -
LIFELYME, Inc. first conference "Similarities and Paradoxes in
Chronic Illnesses" hosted last January 2008 at the Vinoy Resort
in St. Petersburg, Florida was a notable event because it brought
together speakers from both the Chronic Fatigue/Fibromyalgia, Gulf
War Syndrome and Multiple Chemical Sensitivity community and the Lyme
community. The sharing and resulting merging of information on
chronic illnesses presented at this conference was a eye opener for
the medical professionals who attended the event. As a result of the
success of the conference, P.A.N.D.O.R.A., Inc., a CFS/ME
organization in Miami, Florida invited us to partner with them on the
establishment of a NEI Reseach Center. Presently we are working
together towards this goal.
MEETING
THE CHALLENGES OF LYME DISEASES AND OTHER CHRONIC ILLNESSES
The Lifelyme foundation
understands the similarities and paradoxes that exist between all
Neuroendocrine Immune Disorders. These illnesses include Lyme Disease
( Borreliosis Complexes). Chronic fatigue Syndrome, Fibromyalgia,
Gulf War Syndrome, Multiple Chemical Sensitivities, Autism,
Alzheimer's and autoimmune disease like MS, Lupus, RA, ALS, and
Parkinson's. The need for better testing, diagnosing and treatment of
NEID patients has created new challenges for researchers, physicians
and the resulting pressure for better patient care in our society.
In November, 2008, in an
effort to help meet these new challenges, THE LANFORD FOUNDATION,
Lifelyme, Inc. and P.A.N.D.O.R.A., Inc. decided to collaborate our
resources. P.A.N.D.O.R.A. is a non-profit CFS/ME/CFIDS foundation
located in Miami, FL. The partnership between Lifelyme and
P.A.N.D.O.R.A. was notable as it brought together for the first time
advocates from the Lyme disease community and the CFS/ME?CFIDS
community. This merge resulted in P.A.N.D.O.R.A. Inc. embracing Lyme
disease as one of the diseases under the P.A.N.D.O.R.A. umbrella. Our
collaboration also developed into the forming of a grass roots
initative to establish a Neuroendocrine Immune Center at a Medical
Ccllege in the Northeast. Once the NEI Center is in full operation it
is our vision to setup satelite NEI Centers in other states.
The idea for these NEI Centers
is based on the philosophy that the similarities in the symptoms of
Neuroendocrine Immune Disorders are the human bodies response to
similarities in the underlying pathophysiologies that cause
Neuroendocrineimmune Disorder illnesses. Neurological and psychiatric
problems and autoimmune diseases are implicated in patients diagnosed
with NEIDs. Research is connecting Lyme Disease, Autism, Alzheimer's,
MS, Parkinson's, Lupus and other immune dysfunction. Immune
deficiency in cancer patients is well documented, and tumor cells
have developed a variety of cellular, and molecular mechanisms to
avoid anti-tumor immune responses. Accordingly the cornerstone of the
NEIDs research mission is that discoveries and advances made in any
one of the NEIDs will be beneficial to other chronic illnesses.
All
Lifelyme advocates are volunteers. Lifelyme's Board members are
professional, dedicated and passionate people giving 100% of their
time and energy towards the mission of the foundation.
We are doing our part - Please
won't you do yours?
Mail donations to:
NEI CENTER
c/o THE LANFORD FOUNDATION -
LIFELYME, INC.
1400 VILLAGE SQUARE BLVD.
SUITE 3-241
TALLAHASSE, FL 32312
Thank you for your support.
Donations can be made by check
or thru Paypal - click on Donations in left-hand column on this page.