LIFELYME
(A non-profit 501(c)3 charity organization)
An Educational Resource for Lyme Disease and Related Diseases


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The Controversy
........, as the number of U.S. Lyme cases grows by about 30% per year, Lyme patients are trapped between a broken health care system and biased medical guidelines that are being used by insurance companies to deny treatment.

Here’s to hoping that Senator Grassley and CT Attorney General Blumenthal (who is now running for the Senate) will put some legislative teeth into making “non-profit” medical societies like the IDSA more accountable for patient welfare and less beholden to vaccine and drug manufacturers.

Photo caption: At the July 30, 2009 Lyme evidence hearing, ILADs submitted 300 pages of analysis and 1,300 pages of peer-reviewed research contesting the IDSA Lyme Guidelines recommendations.

For an overview of the Lyme controversy, watch the UNDER OUR SKIN trailer:
CLICK HERE TO WATCH!

 


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Dr. Joe Jemsek "Speaks the Truth" Speech


Researcher finds IDSA treatment guidelines long on opinion and short on science IDSA guidelines are long on opinion and short on science.
This is the stunning conclusion made by an infectious disease specialist at Drexel University, Dong Lee, MD in a poster presentation at the recent IDSA annual conference. Dr. Lee’s analysis is based on a broad review of 30 guidelines published by the IDSA between 1994 and 2009. More than half of the recommendations made by the IDSA in these guidelines were not supported by science.

According to a recent Medscape article, Dr. Lee stated that of the 1408 IDSA guideline recommendations he reviewed, "more than half were based on level III evidence, which is from expert opinion or not supported by properly
controlled trials.” Lee said that guidelines should not make strong recommendations in the absence of strong evidence. But of the 589 strong recommendations he reviewed, only 14% were supported by strong evidence. A second independent study also presented in a poster session at the IDSA annual meeting by Abdur Khan, MD, assistant consultant at King Fahad Medical City in Riyadh, Saudi Arabia corroborated these findings. Khans study, which reviewed recommendations in 65 IDSA guidelines found 55% of the recommendations were supported only by opinion, not by science.
This conforms with an analysis of the IDSA Lyme guidelines by Dr. Elizabeth Maloney that found that while the guidelines contained 71 recommendations, 38 are based on level III evidence—namely expert opinion. In addition, the
IDSA panel ignored and failed to consider the clinical experience of physicians who treat longer or with different protocols. In fact, the Connecticut Attorney General found that the divergent viewpoints were excluded from the panel. When divergent viewpoints are excluded from a panel, any consensus based on “expert opinion” is essentially a rigged
vote. Recommendations that are long on opinion and short on science should not replace the judgment of the treating physician.


IDSA Knows That Chronic Lyme Exists Is Lyme Disease Worldwide?


IDSA Lyme Disease Practice Guideline


Lyme War - IDSA Guidelines & ILADS Guidelines (Power Point Presentation)


NIH on Chronic Lyme Disease

 



 

 

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